Willow and her Organic Oasis

https://www.facebook.com/Willowsorganicoasis

A friend of mine in Tasmania is sharing her little girls journey. An amazing little girl with the most amazing mum... If you have Facebook please join the page, here is Sal's latest post

Hello to nearly 800 people following Willow’s story, for the new likers I will give you a bit of background on Willow and the Oasis 
Willow who is 4 next month has a complex array of health issues. She has:

Turners Syndrome a form of dwarfism which also means she won’t have puberty and it comes with many other health issues. 
Autism, 
Sensory Processing Disorder,
Speech and Developmental Delays
IgA Depletion - This means she is missing an important part of her immune system, She has all the other immunoglobulin’s but as Willow likes to be difficult she has the only one you can’t you can transfuse back in.
Celiac, 
Hypercalcimia, 
Hypotonia

Recently I have found out she also has a brain disorder, a form of Neuronal Migration disorder called Grey Matter Heterotopia, where she has significant parts of her frontal lobe missing neurons on both sides. She has a heart murmur that is suspected to be a bicusbus valve we are just waiting on the echo.

And to top it all off two weeks ago she started having seizures, she already had absent seizures but now she is having bigger ones.

Wow that’s a lot when you write it all down at once! Sounds so devastating… so I'll add in that she is a beautiful, funny little girl, who loves Peppa pig and swings and fills my heart to the brim everyday with her courage and spunk :)

I started the idea of the garden when I found out about the IgA depletion, the doctors said there was nothing they could do. I’m not one for sitting around twiddling my thumbs and so I HAD to do something. I figure Organic fresh produce has to help.
The first things I managed to get going were Chooks and some greens. Will has never had any iron stores; we have tried every supplement and diet change but just can’t be raised. Well Will has always had eggs for breakfast and greens in her smoothies. But after a couple of months of having them fresh from our garden for the first time EVER she had iron stores!!! The doctors all asked what new supplement I was using, she was on none it was just the fresh produce.

So it has to help, but also I have to be trying something. Willow’s Oasis is something tangible I can be doing so I don’t feel so bloody helpless… I wish I could be doing more for my precious girl xxxx

Thank you all for following and supporting Willows journey towards health and happiness ♥

Please feel free to share to keep spreading the love and awareness

Backward Thinking Government

Disgusting; how in 2012 do we still have such backward thinking people in government? Why is it that these moronic and discriminatory views are still forming legislation?


The above letter was sent in reply to a friend of mine who wants to marry his loving partner. What makes love between same sex couples any less than that of 'man & woman'?

What a crock. How the feck does he know what the majority think? The rights of the GLBTI community are favorable when the government can see $$$ to be made, they accept defacto status of relationships because $$$ can be made but will not allow marriage in case the rednecks, religious and homophoebes take offense...what is worse is that the amendment was only 2004.

There is no argument that I have heard that gives any valid reason as to why the GLBTI community cannot be married or raise a family...

If you feel so inclined let us show Senator Scott Ryan what we think by sending a nicely worded letter expressing our thoughts. Who knows, if he receives enough letters then maybe he will reconsider what the majority thinks.

Senator Scott Ryan
Address is PO Box 556
Moonee Ponds, Victoria, 3039
(for those outside Australia I am sure Scott would also like to receive your thoughts.)

Please share this with as many people as possible, it is time we see change...

Love

Old Blog but new post...

Not sure how long my motivation will last or why I chose to reactivate my blog. In reactivating it I had to change the address for some reason so I guess none of my old bloggers will even know I am back writing again... I did write for my own enjoyment most of the time anyway so I am ok with seeing what happens from here.


No motivation to be creative now... maybe see you soon.

RIP Dad 1950 - 2009 I miss you xx

"Man Of The Hour"

Tidal waves don't beg forgiveness

Crashed and on their way

Father he enjoyed collisions; others walked away

A snowflake falls in may.

And the doors are open now as the bells are ringing out

Cause the man of the hour is taking his final bowGoodbye for now.

Nature has its own religion; gospel from the land

Father ruled by long division, young men they pretend

Old men comprehend.

And the sky breaks at dawn; shedding light upon this town

They'll all come around

Cause the man of the hour is taking his final bow

G'bye for now.

And the road

The old man paved

The broken seams along the way

The rusted signs, left just for me

He was guiding me, love, his own way

Now the man of the hour

is taking his final bow

As the curtain comes down

I feel that this is just g'bye for now

(Pearl Jam)

A New Year Indeed

Well it has arrived, 2008 in all its splendor.

Photo taken 2006
Time to grab life by the freakin balls and have a go me thinks... after 33.5 years you'd think id worked part of it out, or at least grasped some of the rules :)


I am not making promises this year, just going with the flow and seeing where it takes me. Thanks to all who were a part of my 2007, I wish you all well in 2008. May your life be filled with love, peace & all things positive.


When you find youself saying "I want to do that some day" make that some day happen in 2008. Plan for it and make it happen, you deserve it.

Shine

Soft glow in the distance

Across the wind

Creeping closer.

You smell it before you feel it.

The thawing of the leaves, followed by the thawing of the grass.

Enveloping everything in its path

Then come the sounds

Chirp Chirp

Brighter still

Bright

Warm

Inviting

Life.

And drifts away...

He stares at what was once beautiful and safe, now just a vast empty space. A sorrow filled tear runs down the side of his face, a place he once felt warmth seems cold and empty.

He slowly moves down the shore till the darkened waters bite at his feet. Ripples on the surface shape the depths below. He moves forward; shivers move through his body and his skin becomes rough with goose bumps. The shadowy waters envelop his body like wet cement, heavy and cold yet deeper he moves.

He turns to face the shore and he see’s them waving goodbye. Although his heart feels heavy he understands. Lying back he feels the water take away his weight and although his heart sinks his body floats and drifts away.