Willow and her Organic Oasis

https://www.facebook.com/Willowsorganicoasis

A friend of mine in Tasmania is sharing her little girls journey. An amazing little girl with the most amazing mum... If you have Facebook please join the page, here is Sal's latest post

Hello to nearly 800 people following Willow’s story, for the new likers I will give you a bit of background on Willow and the Oasis 
Willow who is 4 next month has a complex array of health issues. She has:

Turners Syndrome a form of dwarfism which also means she won’t have puberty and it comes with many other health issues. 
Autism, 
Sensory Processing Disorder,
Speech and Developmental Delays
IgA Depletion - This means she is missing an important part of her immune system, She has all the other immunoglobulin’s but as Willow likes to be difficult she has the only one you can’t you can transfuse back in.
Celiac, 
Hypercalcimia, 
Hypotonia

Recently I have found out she also has a brain disorder, a form of Neuronal Migration disorder called Grey Matter Heterotopia, where she has significant parts of her frontal lobe missing neurons on both sides. She has a heart murmur that is suspected to be a bicusbus valve we are just waiting on the echo.

And to top it all off two weeks ago she started having seizures, she already had absent seizures but now she is having bigger ones.

Wow that’s a lot when you write it all down at once! Sounds so devastating… so I'll add in that she is a beautiful, funny little girl, who loves Peppa pig and swings and fills my heart to the brim everyday with her courage and spunk :)

I started the idea of the garden when I found out about the IgA depletion, the doctors said there was nothing they could do. I’m not one for sitting around twiddling my thumbs and so I HAD to do something. I figure Organic fresh produce has to help.
The first things I managed to get going were Chooks and some greens. Will has never had any iron stores; we have tried every supplement and diet change but just can’t be raised. Well Will has always had eggs for breakfast and greens in her smoothies. But after a couple of months of having them fresh from our garden for the first time EVER she had iron stores!!! The doctors all asked what new supplement I was using, she was on none it was just the fresh produce.

So it has to help, but also I have to be trying something. Willow’s Oasis is something tangible I can be doing so I don’t feel so bloody helpless… I wish I could be doing more for my precious girl xxxx

Thank you all for following and supporting Willows journey towards health and happiness ♥

Please feel free to share to keep spreading the love and awareness